Monday, August 18, 2014

Goodbye Summer

Well, hello lovely earthly people!
It's been about three months since i last "blogged."; sorry for that.

So in the last three months a lot has happened. I went to Chicago for family vacation, the PCC came to Nashville, and crossed a few things off the bucket list. I can't believe summer is already over! (Oh, and theres a brief, but important update at the end of this post.)

CHICAGO was so much fun! I went for about a week with my dad, sister, and brother. We all had a great time. We went to a Cubs game, and yes of course they won! We went by my dad's old house. Visited the Ferrara Pan Candy Co. And your probably wandering.. did you get pizza or a Chicago dog or a Chicago beef while you were there, they have the best food? Well, no because thanks to my stricture in my esophagus (narrowness in my throat), I could not eat.. anything! Ugh, I was soooo mad. But hey, I am so glad I got to go! While we were there, we also got to see our cousins that we haven't seen in about 5 years. That was awesome! We missed them soooo much! We also visited the Field Museum. Bellow are some pictures:



























The PCC stands for Patient Care Conference. It is held every two years for people with EB and their families to come and learn about new stuff from doctors and to meet each other and make new friends and hang around people who understand. It is held different places every time. This year it was held at the Gaylord Opryland Hotel in Nashville, TN. I didn't have to go too far ;)
Anyway, it was a blast! I loved getting to meet people that I talked with over Facebook, in person, and making new friends and seeing old friends. And I got to say hello to Dr. Tolar (BMT doctor). I loved hanging with my girls and Hunter. Especially when we hung outside Karly's hotel room with her at like 1am, and before that when Hunter pretended to be room service and when we hung out on the lobby couch till 3 am and when my brother made friends with all the wait staff at dinner and also when he found his new love of honey and when my sister took all the lemon juice packets from Starbuck's and when we went shopping and got matching shirts that said… well i can't say.. haha. and when we went swimming and when we got complementary cd's from this guy playing at Jack Daniel's. Yeah we had fun!


Anton and his mommy and me

my girls

















me, Jan Chadwick, my mom

&



I finalllyyyy got to go horse riding on this beautiful boy. His name's Biscuit.


And lastly a brief update:
I was scheduled to have hand surgery to open up my right hand and an esophageal dilation done at the same time this Wednesday, August 20, 2014. BUT because I am fighting two active skin infections, my hand surgeon will not operate. Soooooo, I may still be able to have the esophageal dilation and have to reschedule the hand surgery for another date. Please pray that I can get the dilation done and everything goes well because food is my best friend. I will keep y'all posted! 

Love,
Sam

1 comment:

  1. Hi Samantha, in my prayers always!! Loved looking at some of the things you have been doing, great pictures and as always, love your writings, did you ever write any kind of books?? believe you would have done well with that, you just have a gift for wording:) for sure. Nice to see you have crossed off another on your bucket list...such a beautiful picture with you and Biscuit. Happy you and your family got to visit with your cousins and you had such a lovely time. I am praying that all goes well and you get the dilation done for sure!!! & Praying about the infections as well, love you and you are always in my prayers, hope you have a really good evening xoxo

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