I Go Back to December All The Time

Hey! Its been too long. I need to stop going months without blogging. Not cool Sam, not cool…haha

A lot has happened since the last time I wrote on here.Well, skin wise I am doing very well. I've been doing better than I have this past year and 1/2. Thank you Jesus for that. Its been a tough year and 1/2 being in and out of the hospital.I did have the esophageal dilation done on August 27, 2014. It went very well! And I can eat.. EVERYTHING!! I have not yet had my hand surgery. Hopefully I will have it soon!I can't believe its almost Christmas, let alone December. How does time go by so fast?? I just don't understand.


So in the past four months, I've lost a really good friend to e.b., gone through another move, got my photo tweeted by Taylor Swift, met Bethany Mota, met Megan and liz, saw Hunter Hayes in Harris Teeter, saw Charles Esten in Target, and got to work on set of Nashville with the cast and the crew. I'd say there were a lot of ups and really low downs.

November 13, 2014 was one of the worst days of my life. I still am in complete shock. One of my best friends left me, her family, and this world behind.






July 7, 2013 we lost her twin Catherine. I love and miss you both terribly.

Sammie and Cat made some pretty awesome YouTube videos that you all should go check out.

https://www.youtube.com/watch?v=hZPXuIjwBkQ

Saying goodbye is so hard, but I am sooooo thankful for the memories with them.


We've lost so many this year to eb and it needs to stop. We need to #stopEB and help each other spread #EBAwareness.

If anyone is interested in helping to raise money to find a cure and join the fight please visit

http://ebresearch.org and click 'Take Action.' They are so close to their goal of $5M and so close to a cure. We need a cure so bad. This has to stop.

So I am currently am not working but am looking for a part time job. My dream job would be to do something in the music industry, with kids, or animals but not sure what yet. I did apply for a receptionist position at Big Machine Label group but never heard back :( I also have been in contact with Mars Petcare for a position as a pet food analysts. Don't know exactly what I'd be doing but I'm definitely not going to be tasting pet food!! haha. In the meantime, I have been working on set of the ABC show Nashville as an extra. Its so much fun! I love it!! I love watching how its all put together. All the behind the scenes stuff is so cool to watch!! You can actually see the back of me in Episode 6 Season 3 with Maisy Stella. I got to meet her and she's the sweetest thing!! So nice! The whole cast and crew is!! Its so crazy though because I remember watching Lennon and Maisy's first youtube video back in 2011 and now I get to work as an extra on set with them. So crazy! They're so talented!
You see the back of me in a beige sweeter at 0:09.

I am also looking for an apartment. Anything that I can find within 40 mins and in my price range is unavailable. So frustrating!! I found an apartment complex I really liked in Fairview but there isn't any available and there is 30 people ahead of me on the wait list. I would really love to be in downtown Franklin though. And pets being allowed is a must. I'm still looking. Its all in His timing. I absolutely cannot wait to get out on my own though. Life at home is just too much sometimes.

Its crazy how much things/people can change in one year. Friends fade. People come and go. I feel like I've been losing all my good friends. So thankful for their memories though. And Im so thankful for Meghan- we've been best friends since kindergarden and she is basically the best. Wish she lived in Nashville. I probably should get out more and find some more friends within a 25 mile radius haha. Im such a loser :P

And lastly, If you all want to keep up with me more often and see what I'm up too follow me on Instagram @samantha.sheridan

Until next time

•Love•
xoxo
    Sam

Goodbye Summer

Well, hello lovely earthly people!
It's been about three months since i last "blogged."; sorry for that.

So in the last three months a lot has happened. I went to Chicago for family vacation, the PCC came to Nashville, and crossed a few things off the bucket list. I can't believe summer is already over! (Oh, and theres a brief, but important update at the end of this post.)

CHICAGO was so much fun! I went for about a week with my dad, sister, and brother. We all had a great time. We went to a Cubs game, and yes of course they won! We went by my dad's old house. Visited the Ferrara Pan Candy Co. And your probably wandering.. did you get pizza or a Chicago dog or a Chicago beef while you were there, they have the best food? Well, no because thanks to my stricture in my esophagus (narrowness in my throat), I could not eat.. anything! Ugh, I was soooo mad. But hey, I am so glad I got to go! While we were there, we also got to see our cousins that we haven't seen in about 5 years. That was awesome! We missed them soooo much! We also visited the Field Museum. Bellow are some pictures:

The PCC stands for Patient Care Conference. It is held every two years for people with EB and their families to come and learn about new stuff from doctors and to meet each other and make new friends and hang around people who understand. It is held different places every time. This year it was held at the Gaylord Opryland Hotel in Nashville, TN. I didn't have to go too far ;)
Anyway, it was a blast! I loved getting to meet people that I talked with over Facebook, in person, and making new friends and seeing old friends. And I got to say hello to Dr. Tolar (BMT doctor). I loved hanging with my girls and Hunter. Especially when we hung outside Karly's hotel room with her at like 1am, and before that when Hunter pretended to be room service and when we hung out on the lobby couch till 3 am and when my brother made friends with all the wait staff at dinner and also when he found his new love of honey and when my sister took all the lemon juice packets from Starbuck's and when we went shopping and got matching shirts that said… well i can't say.. haha. and when we went swimming and when we got complementary cd's from this guy playing at Jack Daniel's. Yeah we had fun!

Anton and his mommy and me

my girls

me, Jan Chadwick, my mom

&

I finalllyyyy got to go horse riding on this beautiful boy. His name's Biscuit.

And lastly a brief update:

I was scheduled to have hand surgery to open up my right hand and an esophageal dilation done at the same time this Wednesday, August 20, 2014. BUT because I am fighting two active skin infections, my hand surgeon will not operate. Soooooo, I may still be able to have the esophageal dilation and have to reschedule the hand surgery for another date. Please pray that I can get the dilation done and everything goes well because food is my best friend. I will keep y'all posted! 

Love,

Sam

SuMmEr AdVeNtuReS

Wow.. it's been a while since ive last "blogged." lol. Sorry, for that, I'm trying to blog more consistantly.

So, I went to the doctor today for a check-up and I'm doing alright skin-wise. My doctor did prescribe me something different today though. He told me I need to do something fun. lol. I think he's right. So I created a Summer 2014 Bucket List of things I want to do that I consider fun and anyone who wants to join me hit me up. Memories are better when they are shared. Anyone who doesn't like heights or being outside or animals or water or staying up late or getting lost or crazy adventures, this is not for you. [and some of these are just personal-like goals.] [Meghan, heres your schedule;) ]

Summer 2014 Bucket List

1. go canoeing like >5 times 
2. ride in a hot air balloon 
3. horseback ride for dayyysss
4. visit a huge waterfall and stand under it
5. bonfire and friends and smoothie nights
6. go fishing
7. run through walmart blasting some Jay Z
8. maybe 7 is not such a good idea lol
9. watch the sunset on the natchez trace bridge again and again
10. meet new people, make new friends
11. go sky diving
11. spend time with friends
12. see miley in concert (attn people who don't like her, you can get off my blog now.)
13. hit up Radnor lake
14. hit up downtown nashville
15. get my own appartment 
15. paint stuff
16. deepen my relationship with Jesus
17. visit lookout mountain
18. see The Fault in Our Stars
19. more bike rides
20. visit Gatlinburg, Tn (Sky lift!!!! and Smokey Mountains!!) 
21. eat at the Loveless Cafe and the Pharmacy (still never been there)
22. stay up and stare at the stars all night until sunrise
23. go mudding
24. make memories
25. get a tattoo 
26. get lost
27. laugh a lot

and of course cannot wait for the PCC!


goodnight!

Love, 
Sam

{as I complete them, you will notice they will be crossed off}

Sunset on Natchez Trace Pkwy Bridge 2014 (pc: Sam Sheridan)

The Sunshine State

Hey guys!
So i figured i would write something. lol.

I am doing well. I am not [thank you Jesus] running fevers anymore. Prayer works. Thank you. Everyone knock on wood [literally]. 
My spring break 2014 was spent in Florida and it was awesome! I go to see my best friend since kindergarten, see Rena, visited with my aunt, visited with my grandpa, made it down for the 5k at UCF [Thank you Kristen], and I went to the beach. And guess what?? We got to drive a black 2010 Toyota Prius to FL and back to TN!! how awesome! haha. I had a great time. The weather was amazing. I miss it soooo much there, but I don't think I would move back because I'm starting to like TN too. 

it's sunshine, blue eyes, tan lines...

slow tide rollin'...

chillin', breezin', 

sippin', singin', whooaaaa

BEACHIN'

Oh and of course here's a song to go with it:

Love, 

Sam

A Key to My Heart

Hey guys! It's been a while.
Well, I am 19 now so thats cool I guess. I feel so old lol.
Im doing pretty good but this post is going to focus on a request I got. A few people requested that I write about my hopes, dreams, fears, what my plans are as far as working/school, thoughts on love and life. So here goes nothing..

I have big dreams. They don't scare me so maybe they're not big enough? lol idk. Anyway, since I was really little my dream was to be a singer. Haha, yeah, that's not my dream now but I do write songs. Thats something that probably no one really knows about me and I just do it for fun. I love to write and so I am thinking about maybe writing a book, maybe. It will be fiction but based on a true story.
I  want to go to college but I still do not know what I want to do. I have ideas but idk. I'm absolutely fascinated with space and our universe and stuff like that. I also love kids and animals. I just don't know what I want to do as a career. But I need to do something with my life. After college I hope I've found the right guy by then because I want to walk down the isle in a white dress and have kids of my own. That is my biggest dream, to have a baby- a family of my own. Wherever I live, I want to have a barn and have horses. I've always wanted a horse. I love, love riding. And I want to live on a lake so I can go canoeing and boating whenever I want. Oh, and own a black 2010 Toyota Prius. Haha. Anyway, these dreams are ways away.
I am hopefully going to start college and get my own apartment soon. That will be super exciting!

My fears are escalators, not knowing, and bugs. Ew, bugs.

I over think everything. And by everything, I MEAN EVERYTHING! Over thinking will be the death of me! My mind literally keeps me awake at night. Sometimes I find myself going into deep thought about life. Sometimes I get so deep into thought about life, my brain just can't comprehend anything deeper, its kind of strange. I'm kind of strange I guess or we are not meant to understand everything. Like, God created us and this universe so how did God become God? What if 'I' was never born? Where would I be if my parents didn't have a child? Would I not exist? Or was I meant to be born anyway and if I wasn't born their child I would've been born someone else's '? Why was I born different? Why did 'I' get so lucky? I wouldn't trade my life God's given me for the world. I love my life exactly the way it is. Although, a cure would be pretty nice, I am happy the way I am. It makes you think. Its like the way our life is right now is the way God planned for it to be. He already knew who is going to be our mother, father, sister, brother, friend. Its weird to think about. He knows exactly what is going to happen next too. He wanted me to be born different for a reason. He has a purpose for me that I have yet to find out. He has a purpose for all of us. 

There are also sooooo many distractions in this life that are pulling us away from God and whats important. Electronics, material crap, money- just to name a few. It drives me nuts when people are on their phone literally all the time. If your going to spend time with someone get off the phone and enjoy that time because you won't be able to get that time back. We can't take any of that stuff with us when we die. Its worthless. What matters is what you did with your life. Who's life did you touch? Did you live your life to the fullest? Did you spread the word of God? Because God lives within us. 

Life is a game, and love is the prize. [If you haven't noticed, I love song lyrics.]

I believe in love and soul mates and crap. I believe that there is someone out there for everyone. I believe that everyone deserves somebody to make them look forward to tomorrow. I believe that everyone deserves to be happy. I believe in a happy ending. I believe that everything happens in God's perfect timing, so be patient.First of all, I do not believe in love at first sight. I mean who does?? It's crap. Yeah, you could probably fall in love with their looks but you don't know them and your not falling in love with them as a person. Looks ARE NOT everything. It's when you start to get to know someone when you actually start falling for them. You fall in love with who they are as a person, their personality. They could be so dang cute but be a jerk and have a horrible personality when you get to know them. They could also be so dang cute and be the sweetest person you've ever met and have a great personality. You have to get to know someone before you can fall in love with them. At least thats what I think, not that it really matters. I'm not good at telling guys how I feel, let alone anyone really. I am really shy until I get to know you well and start to feel comfortable around you. And most view me as 'un-date-able.' Just because I have a skin condition does not mean I can't have a physical relationship. I can.

Well, thats it. You should feel special because I just gave you A Key to My Heart, part 1.

Goodnight!

Love,
Sam

I'm Home!

Hey guys,
Well I got to go home on Wed., Jan 8th!! They took the picc line out and sent me home on no antibiotics. I am doing better, no fevers, and it seems like the infection is better, but my skin isn't healing like normal. Its really weird.

Anyway, this is just a quick little update. I don't have much to say lol.
Oh and i forgot to wish you all a happy new year, so Happy New Year!!

Love,
Sam

It's All Good

Hey guys,
So as far as an update goes… I am not running fevers anymore! Yay! And I am starting to show improvement in my skin. I am still in the hospital and not 100% better yet, but I'm getting there. I am possibly coming home later this week!!! My doctors in MN were able to communicate with the doctors here and I think that helped a lot. I am so thankful for that. I am not able to go up there for treatment yet due to the fact that my insurance will not cover me there.

And I just want to address some issues that have been bothering me for the past couple days..
First of all I'm very upset with all the drama/attention that is going around on FB right now. I don't even know how to put it into words. I don't want to sound ungrateful or selfish. I know the gofundme site was set up with good intentions. The funds are being used appropriately to help my family. Don't get me wrong, I am so so thankful that you all are able to help my mom and family out because she is struggling and really does need a car but enough is enough. I don't want this to go viral. I am not dying here, ok? Yes, I am fighting a hard battle and it was scary but I was a lot more sick when I was going through the BMT in MN than I am now. I will win this battle. I always win. This is a piece of cake compared to what I've already been through. E.b will never get the best of me; It NEVER does! And I am not some charity case and didn't sign up to be one. And I don't want anyone to see me in that kinda light. 
Furthermore, I am 18 fricken years old now and I am my own person and I have the right to choose whether I want every single detail of my personal information being shared on the internet. If I wanted to share it I would've by now. But I don't want to and it bothers me that some people can't respect that.
On fb, every time someone shared the tlc thing, the fundraiser thing, or tagged me in either one, I would see it and reading some of the posts people wrote when people shared that link just made me kind of sad/mad/depressed. I don't know how else to explain it. It really got me down. I don't want anyone to take this the wrong way, I am happy to spread awareness for e.b. and some of the things people wrote were very,  very sweet and I appreciate you all wanting to help, but I DONT' WANT IT TO HAPPEN IN THIS WAY. I felt like people thought that I am literally fighting for my life. I was really sick but I wasn't fighting for my life. I am fine. And I will be fine. I deleted my fb for several reasons, but it is back up now.

Second, there were some things being said about my dad. And he gets left out of the picture a lot. This one especially pissed me off the most. My sister and brother and I, all live with my dad 50% of the time. Mon, Tues, Wed till 6pm and every other weekend. He doesn't have to pay child support because we live with him too. We live with my mom 6pm Wed. to 6pm Fri. and every other weekend and holidays/birthdays are shared. Yes, he works too and he doesn't get home till late but he does the best he can. I feel like he's made out to be this 'bad dad' and 'he left us' but he isn't and 'he' didn't. He's a really great dad.

And Im not trying to start any more drama, I just wanted to get this off my mind. I hate drama. And would like to ask you all to please just stop. 

Lastly, I know plenty of adults with e.b. in their 20s, 30s, 40s, married, some with kids, and still living life to the fullest. And I want to say Thank you to them, because they have given me hope for my future and proven its possible. Anything is possible. Thats going to be me one day, I promise. And I don't break my promises. lol.
"I can do ALL things through Christ who gives me strength."Philippians 4:13


I am sosososososo very thankful for all the prayers, love, and, support!! Thats what means the most!!

And I would like to send a whole bunch of love and prayers to my brave friend Hannah,  who is sick right now too <3 you can follow her story here-->> http://www.acureforhannah.com

Love,
Sam