Friday, December 13, 2013

Everything Happens for a Reason

Hey guys!! 
Well, I am in the hospital again. By again I mean I was here 3 weeks ago for the same issue. I have a skin infection that grew MSSA. They put me on an oral antibiotic for two months prior to 3 weeks ago. It did not clear up the infection and I was running fevers so they decided to put me on the IV version of it for a week in the hospital. I wasn't running any more fevers and things started looking better so I got sent home and put back on the same oral antibiotic for ten days. After about a week later I started running higher fevers and my skin started looking bad again. [while still on oral antibiotic]. So I waited it out to see if I would just get better on my own since it was around Thanksgiving and my doctor was out of town. But I didn't get better or feel better, so Thurs. Dec 5 I had a doctors appt to follow up from the hospital stay. My doctor and I both agreed that we needed to do something different because i should be better by now. Oh and I am allergic to the other oral antibiotic that was the other option besides IV. So we planned for admission on Friday the 6th and got started on a stronger IV antibiotic. They started an IV that night and the next day it went bad. They started another IV on Sat. and it started to hurt and burn really bad when they just flushed with saline so they stopped the IV antibiotic because they figured out it was the antibiotic that was being very harsh on my veins. So they planned to put a picc line in me on Mon. since that was when the IV team would be here. Monday came around and I waited all day for them to come put my line in and they never came. My doctor was super mad because all this time Im not even on the antibiotic I came in for so I'm going to have to be here longer :/ So tuesday came around and the IV pick team lady came in and she was very rude to me. She would not listen to anything I was trying to say. I was trying to explain to her that I have a skin condition and I can't use tape on my skin and that I have my own supplies that she could use secure the picc line with. As I was telling her this she put tape on me purposely! And then she basically said "Well if I can't use tape, then I'm not doing it." And I was like "Ok, whatever. [Your crazy. I've had a million picc lines put in before and I never use tape]." She was even mean to my nurse that day. There was no other IV picc team member on call. So, I got sent down to radiology later that day and the nicest doctor who actually listened to me about the tape put my picc line in. Everything went great and they even x-rayed it at the same time. This is the part where I say 'Everything happens for a reason.' I am so blessed I have Him up there looking out for me because I am so glad that lady didn't put my line in. I didn't trust her at all. I think it would've ended bad. That situation happened for a reason. I am so blessed. 
After that happened I started thinking to my self what is going on in that lady's life that is so horrible that so early in the morning she is just plain rude and mean. All I can do is pray for her. She needs a lot of prayers.
So Tues. night I started back on the stronger IV med and they added another one to it. Ive been on them for 3 1/2 days now and I'm starting to 'feel' a little better but I'm not seeing much improvement in my skin.
Also I have the bestest friends in the world.
On Wed one of my good friend's brought me a Christmas tree for my room! That was awesome! Thank you Jacob, I love it!
And on Thurs. two of my other good friend's came by and hung out and brought me a cute little Christmas cake! Thank you Maddie and Ana, It was sooo good! lol 
And today my friend Savannah came and hung out with me and we had such a fun time!!
Also Jacob came back and we played some poker. We were betting with spoons and forks. haha.
I am so blessed to have you all in my life, you don't even know. And ily. And we need to hang out more often, maybe even outside of the hospital lol

Well, that pretty much sums it up. :)

Love,
Sam

6 comments:

  1. Sam, as always you inspire me. I know we haven't seen you since you guys left Tampa but you're all thought of often. Grace and Chloe are Facebook friends. I'm so glad they can connect that way. Please tell your mom, Chloe, and James we said hello. We will continue to pray for you and your family. Have a blessed Christmas and keep up the fighto
    Love,
    Michele Gale

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  2. I'm sorry for your bad picc line lady. You are right though, she is probably struggling with something big. The holidays can do that to you.

    On a brighter notw, you got it in and had a wonderful doc/nurse/tech do it right and listen to you. I have found that all my doctors are better at listening to me too. After all, you know best. you have been through it all.

    Blessing to you little one. Tell your mama hi for me.
    xo
    Bobbi Dougherty
    (Mary Bottini's sister)

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  3. Sam, I have followed you for years through your mom's blog I am happy I finally get to follow you through this one. We have never met but none the less I feel as if I know you and your family. I followed you all through transplant and prayed it would cure you so you and even though it didn't I hope they learned a great deal by you so that maybe another child will benefit from your journey. You are such a special child to have such a caring soul, always thinking of others even when you are dealing with what you are. Thinking of that lady that was so mean to you such shows what a wonderful person you are and that is what come shining through. Following you will be a joy as you inspire me to be a better person.
    Anne Marie Palmateer

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  4. Hi Sam,
    I am a follower that prayed throughout your BMT and after, so glad to see you writing your own blog! Eighteen already, amazing! Can't wait to read more of what you have to say. It will help to know how to continue praying for you. Would love to hear what your hope and dreams are, what your plans are, working? school? Anyway, I'll be praying you are getting better and can enjoy your Christmas celebrations.
    Kim M, MI

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  5. I have been following your caring bridge site for a long time. I think it happened through Patrice Williams blog. I have never met her or you. I think of you often and wonder how you are doing. You are such an amazing, inspiring, strong young woman. I hope you continue to write this blog. I have missed you!! I have prayed and prayed for you and your family. I hope your mom and the rest of your family is doing well. Hopefully you will whip this MRSA's butt and get to go home soon! Much love and hugs to you!

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  6. Thank you all so much for all of your support and prayers. It means so much! And I love reading the comments! Just to clear this up, I do not have MRSA. I just have MSSA.

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